Hōʻike hōʻike: “He Down Syndrome kaʻu keiki”

ʻAʻole wau i ʻano he keiki. Ua like au me ka poe hele.Makemake au i nā ʻike a me nā hālāwai naʻauao, ua kākau au i nā ʻatikala a me nā puke, ua aloha mau wau, a ʻaʻole ʻo ka ʻōpū o ke keiki pēpē i loko o koʻu ʻāina ākea. ʻAʻole i ka alienation, ʻaʻole i ka looping "areuh" a me nā puka hewa. ʻAʻohe keiki, e ʻoluʻolu! Ua hāpai au i kahi Helene aʻu i aloha nui ai akā ua hoʻi mai i kona ʻāina ma hope koke iho o ka hānau ʻana o Eurydice, a waiho iā mākou me ka ʻala o ka paka anuanu. ʻAʻole ʻo ia i ʻike i kāna kaikamahine. ʻO Vasilis, kēia ʻōpio nui, ʻaʻole makemake e hele i ke ala o ka ʻoiaʻiʻo me aʻu. No ka mea, ʻaʻole i loaʻa iā Eurydice, i ka wā i hānau ai, he 23 mau chromosomes e like me mākou, akā he 23 mau pālua a me ka hapa. ʻO ka ʻoiaʻiʻo, loaʻa i ka poʻe me Down's Syndrome ka hapalua o nā chromosomes. ʻO kēia ʻāpana liʻiliʻi aʻu e makemake ai e kamaʻilio e pili ana, no ka mea, ʻoi aku ka maikaʻi, ʻoi aku ka nui.

Ua hoʻouna mua kaʻu kaikamahine i kona ikaika iaʻu, ka mea i hoʻōho ʻo ia mai kekahi mau mahina o ke ola, e kāhea ana i nā holo kaʻa kaʻa pau ʻole a me nā huakaʻi i ke kūlanakauhale. No ka mea e hiamoe, e kalaiwa ana au. I ka holo ʻana, kākau wau i koʻu poʻo. ʻO wau ka mea i makaʻu o kaʻu Dice, -ʻo Buddha hoʻi i ka hānauʻana, ma konaʻano i hōʻiliʻiliʻia, he chubby loa no nā lole o ke kaikamahine liʻiliʻi aʻu i hoʻolālā ai iā ia -, e lawe i koʻu hoʻoikaikaʻana mai iaʻu, uaʻike wau he kū'ē, me ia, koʻu holo ka manao. Makaʻu wau i ka wā e hiki mai ana, he ʻoiaʻiʻo, a i ka lā e pau ai kā mākou mau kūkākūkā. Akā wikiwiki loa, pono wau e ʻae i kēlā me kēia hihia, ʻaʻole ia i pale i kaʻu hana. Ua ʻae ʻo ia iā ia e hana maikaʻi. ʻOi aku ka pololei, ʻoi aku ka ʻoiaʻiʻo. Ua makemake au e hōʻike i kaʻu kaikamahine i nā mea he nui a lawe iā ia i kahi huakaʻi. ʻOiai ʻaʻole maikaʻi kaʻu kālā, ua manaʻo wau he mea pono ia no mākou. I loko o kēia manawa, ʻaʻole mākou i hoʻōki i ka ʻike ʻana i kekahi i kekahi, ʻoiai i kekahi manawa e hakakā nei i nā pōʻino. Ua nele au i ke kālā, palekana, i kekahi manawa ua holo mākou i nā mea hoʻokipa ʻē, a ma hope o kekahi mau huakaʻi, ua hoʻoholo wau e hoʻi i Crete. Ma kahi mamao loa mai iaʻu ka manaʻo e hoʻāla hou i ka lapalapa me Vasilis ka mea aʻu i ʻike mua ai ua hoʻihoʻi hou ʻia me kekahi, akā makemake wau e ʻike inā hiki mai ke kākoʻo waiwai mai kona ʻohana. Auwe, ʻo kona kaikuahine a me kona makuahine i makaʻu nui iā ia, ʻaʻole lākou e pale iā mākou e like me ka hiki. ʻO ia hoʻi, ua hōʻole ʻo ia i ka hoʻokuʻikahi me ka mea liʻiliʻi, me ka hōʻole ʻana i nā koho aʻu i hāʻawi ai iā ia ma kahakai e makemake ai iā lākou, ua haʻi mai ʻo ia iaʻu, he hele wāwae me kāna ʻīlio ... hoao. ʻOiaʻiʻo, he mea hiki ʻole iā ia ke hānau keiki me Down's Syndrome. Aia ka ʻōlelo hoʻoholo. ʻO Vasilis ka makua kāne o Eurydice, akā ʻaʻole ia i hoʻololi i kona ʻano. Eia naʻe, hauʻoli wau i koʻu hele ʻana i kēia mamao, i Chania, Crete. Kahi i hānau ʻia ai nā kūpuna o Dice, kahi i noho ai, i kēlā mau pōhaku kahiko a me kēlā makani. ʻO nā pule ʻelua o ka noho ʻana ʻaʻole i hāʻawi iā ia i makuakāne, akā ua hoʻoikaika hou lākou i kā mākou pilina. I ke ahiahi, ma ko mākou pā hale, makemake mākou e ʻōlelo i ka pō maikaʻi i ka mahina me ka hanu ʻana i nā ʻala o ka sage a me koume.

ʻO kēia mau ʻala wela, poina koke wau iā lākou i ka wā i komo ʻole ai i ka nursery, ua ulu ʻo Eurydice i ka maʻi leukemia. I ka hoʻomaka ʻana o nā lāʻau haʻalulu, ua hoʻonohonoho koʻu makuakāne e hoʻokomo iā mākou i loko o kahi haukapila ma Los Angeles a hoʻopaʻa inoa i ke keiki liʻiliʻi i kāna ʻinikua olakino. Ua uhi ʻia kaʻu kaikamahine i nā kala ʻālohilohi me ka catheter a me nā paipu. ʻO wau wale nō (ʻo kona makuakāne aʻu i noi ai inā hiki iā ia ke lilo i mea hāʻawi i ka iwi iwi kūpono e hāʻawi iaʻu a hana i kekahi mea e hoʻopakele ai iā ia), ua hoʻomanawanui ʻo Dice i nā ʻano hana weliweli a pau, me ka wiwo ʻole. . No ko'u makemake e nalowale iaia, ua hoohana au i na hoomaha pokole e holo i waho a haawi aku ia ia i kekahi mea e lealea ai iaia. Ua hoʻi koke wau i kona kino liʻiliʻi ʻeha, a hoʻolohe wau i nā kahu hānai e ʻōlelo nei pehea ʻo Eurydice ko lākou "pana hauʻoli".ʻO ia paha kona ʻano o ka noho ʻana i kēia manawa ka mea i pili i ka poʻe i maʻa i ka nostalgia no ka wā i hala a i ʻole nā ​​ʻōlelo hoʻohiki o ka wā e hiki mai ana. ʻO Eurydice, ma kekahi ʻaoʻao, ʻike i ka manawa, hauʻoli. ʻO ka manaʻo maikaʻi, ka mākaukau no ka hauʻoli a me ke aloha, ʻo ia ka mea a kaʻu kaikamahine i makana. A ʻaʻole hiki ke hoʻokūkū pū me ia ma kēia wahi, ʻo ia hoʻi ma waena o nā mea aʻu i mahalo mau ai. Ua huki mākou ʻelua i ka hana o ka hoʻopaʻa ʻia ʻana no ʻehiku mahina i loko o kēia lumi haukapila a hoʻomanawanui i ka walaʻau o nā mīkini. Ua noʻonoʻo wau pehea e leʻaleʻa ai i kaʻu kaikamahine, e pāʻani ana i ka peʻe a me ka ʻimi me ka maʻi bacteria e pono e haʻalele iā ia. Noho mākou ma kahi kokoke i ka puka makani, kamaʻilio mākou i ka lani, i nā kumulāʻau, i nā kaʻa, i ka lepo. Pakele mākou mai kēlā lumi lino keʻokeʻo me ka noʻonoʻo. ʻO ia ka hōʻoia o ka noʻonoʻo pū ʻana ʻaʻole hiki ʻole… A hiki i ka lā i hiki ai iā mākou ke hele i waho, e holo wikiwiki i ka ʻāpana hakahaka ma ka ʻaoʻao a e ʻono i ka honua me ko mākou manamana lima. Ua hala ka maʻi maʻi ʻoiai ua mau ke nānā ʻia.

Hoʻi mākou i Paris. ʻAʻole maʻalahi ka pae ʻana. I ko mākou hōʻea ʻana, ua kuʻi mai ke kahu o ka hale iaʻu i lalo. ʻIke ʻo ia i ka 2 a me ka hapa makahiki, ʻaʻole i hana ʻo Eurydice, ua ʻōlelo ʻo ia iaʻu e hoʻokomo iā ia i kahi institute kūikawā. Ma hope koke iho, i koʻu hoʻonohonoho ʻana i ka faila me ka manaʻo e ʻike ʻia kona hemahema, ua ʻaihue wau i kaʻu ʻeke. Ua makemake nui au akā i kekahi mau pule ma hope mai, i ka hiki ʻole iaʻu ke hoʻouna i kēia faila mai ka ʻaihue ʻia mai iaʻu, ua loaʻa iaʻu ka ʻae. No laila ua kau ka ʻaihue i ka faila noʻu. Ua lawe au i kēia hōʻailona o ka hopena i makana. Ua kali kaʻu Eurydice liʻiliʻi a hiki i ka makahiki 3 e hele, a ʻo ka 6 e haʻi iaʻu aloha wau iā ʻoe. I ka wā i ʻeha ai ʻo ia i kona lima a wikiwiki wau e kāʻei iā ia, ua hoʻokuʻu ʻo ia: aloha wau iā ʻoe. ʻO kona ʻono i ka hele wāwae a me kona huhū o ka neʻe ʻana i kekahi manawa ke alakaʻi nei i nā hana hoʻoweliweli weliweli a i ʻole e pakele ai, akā ʻike mau wau iā ia ma ka hopena o kēia mau fugues hauʻoli. ʻO kēia kāna makemake, hohonu hohonu, ko mākou hui hou ʻana?

ʻO ke kula kekahi ipu iʻa ʻē aʻe, no ka mea he paʻakikī ka loaʻa ʻana o kahi hale "kūpono".ʻAʻohe wahi o kaʻu keiki kīnā a hiki i ka laki, ua loaʻa iaʻu kahi kula i ʻae ia a me kahi lumi liʻiliʻi ʻaʻole mamao loa mai kahi e hiki ai iā mākou ke hoʻokipa i kā mākou mau leʻaleʻa ʻelua. A laila, pono ke alo i ka make o koʻu makuakāne a ma laila hou, hōʻike mai ʻo Eurydice iaʻu i ke ala, e hoʻolohe ana i ka heluhelu ʻana aʻu i hana ai iā ia ʻo "Pinocchio" ka puke a koʻu makuakāne i makemake ai e loaʻa ka manawa e heluhelu ai iā ia. Ua makemake ʻo Pinocchio e lilo i keiki liʻiliʻi e like me nā poʻe ʻē aʻe a lilo ʻo ia i ka hopena o kona ola ʻana, akā ʻo kona ola i haʻi ʻia ʻo ia ka ʻokoʻa. He moʻolelo hoʻi kaʻu kaikamahine. ʻAʻole i lawe aku kāna chromosome hou i kekahi mea mai iā mākou. Ua ʻae iaʻu e noʻonoʻo maikaʻi, e aloha maikaʻi, e neʻe wikiwiki. Mahalo iā ia, maopopo iaʻu i kēia: "ʻO ka pōmaikaʻi ka mea a mākou e hana ai ke hoʻōki mākou i ke kali ʻana i ka ʻakaʻaka hope iā mākou, ke haʻalele mākou i kēia manaʻoʻiʻo, hōʻoluʻolu a hiki i ka hopena. anesthesia, e like me ka mea maikaʻi loa e hiki mai ana ". “