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"ʻO ka mea paʻakikī ka maka o nā mea ʻē aʻe."
ʻO Hélène lāua ʻo Fernando, nā mākua o Lisa, 18 mahina.
"Ma kahi pilina no nā makahiki he ʻumi, ua makapō mākou, ua ʻike ʻia kā mākou kaikamahine. Ua like mākou me nā mākua a pau, ua hoʻololi mākou i ko mākou nohona i ka hiki ʻana mai o kā mākou keiki. Ke kaʻa ʻana i ke alanui i ka hola wikiwiki me kahi kaikamahine ʻōpio e piha ana i ka ikehu, kūʻai i loko o kahi hale kūʻai lehulehu, kuke, ʻauʻau, hoʻokele crises… Ua loaʻa maikaʻi iā mākou kēia hoʻololi o ke ola, hui pū, i ka ʻeleʻele.
E noho me kou mau manaʻo ʻehā
ʻO kahi maʻi hānau ʻana ua nalowale ko mākou ʻike ma kahi o 10 mau makahiki. He pōmaikaʻi. No ka mea, ʻo ka ʻike ʻana he mea nui ia. ʻAʻole hiki iā ʻoe ke noʻonoʻo i kahi lio, a i ʻole e ʻike i nā huaʻōlelo e wehewehe i nā kala no ka laʻana, i ka mea i ʻike ʻole i kekahi i ko lākou ola, wehewehe ʻo Fernando, i kāna kanahā. Huli ko mākou Labrador e hele pū me mākou i ka hana. ʻO wau, ke mālama nei au i ka hoʻolālā kikohoʻe ma ka Federation of the Blind and Amblyopes of France, ʻo Hélène kahi hale waihona puke. Inā ʻo ka hoʻokomo ʻana i kaʻu kaikamahine i loko o ka stroller hiki ke hoʻomaha i koʻu kua, wahi a Hélène, ʻaʻole ia he koho: ʻo ka paʻa ʻana i ka stroller me ka lima hoʻokahi a ʻo kaʻu koʻokoʻo telescopic me kekahi.
Inā ua ʻike ʻia mākou, inā ua loaʻa koke iā mākou ʻo Lisa. I ka lilo ʻana i mau mākua, hoʻomākaukau mākou iā mākou iho me ka naʻauao a me ke akeakamai. ʻAʻole like me nā kāne i hiki ke hoʻoholo a ʻoi aʻe a liʻiliʻi paha e loaʻa kahi keiki ma ka makemake, ʻaʻole hiki iā mākou ke loaʻa, ʻae ʻo Hélène. Laki nō hoʻi mākou i ke kākoʻo maikaʻi ʻana i koʻu wā hāpai. Ua noʻonoʻo maoli nā limahana hānai me mākou. " "Ma hope, hoʻomaha mākou me kēia mea liʻiliʻi i ko mākou mau lima ... e like me nā mea ʻē aʻe!" Ke hoʻomau nei ʻo Fernando.
ʻO ke ʻano o ka hoʻoikaika kino
"ʻAʻole mākou i manaʻo i ka manaʻo hou iā mākou. ʻO ke ʻano o ka hoʻokaumaha ʻia, e like me ka infantilization, ua iho mai ma luna o mākou, "wahi a Fernando. ʻO ka mea paʻakikī ka nānā ʻana o nā poʻe ʻē aʻe. ʻOiai he mau pule wale nō ʻo Lisa, ua nui nā ʻōlelo aʻo i hāʻawi ʻia mai iā mākou e nā malihini: "E makaʻala i ke poʻo o ke pēpē, ʻoi aku ka maikaʻi o ʻoe e paʻa e like me kēia ..." lohe mākou ma kā mākou huakaʻi. He manaʻo ʻē ka lohe ʻana i nā malihini e nīnau hilahila ʻole i kou kuleana ma ke ʻano he makua. ʻO ka ʻike ʻole ʻaʻole like ia me ka ʻike ʻole, hoʻoikaika ʻo Fernando! A iaʻu, ʻaʻohe nīnau o ka hōʻino ʻia, ʻoi aku ma hope o 40 mau makahiki! Ke hoʻomanaʻo nei au i kekahi manawa, i loko o ke kaʻaahi, ua wela, ʻo ia ka hola wikiwiki, e uē ana ʻo Lisa, i koʻu lohe ʻana i kekahi wahine e kamaʻilio ana noʻu: “Akā, e hele mai ʻo ia e hoʻopō i ke keiki. , pono e hana kekahi mea! uē ʻo ia. Ua haʻi aku au iā ia ʻaʻohe mea hoihoi i kāna ʻōlelo a ʻike wau i kaʻu e hana nei. ʻO nā kūlana hōʻeha e ʻike ʻia e nalowale ana i ka manawa, akā naʻe, ʻoiai ua hele ʻo Lisa.
Ke hilinaʻi nei mākou i ka automation home
ʻO Alexa a i ʻole Siri e maʻalahi ko mākou ola, ʻoiaʻiʻo. Akā pehea ka hiki ʻana o ka poʻe makapō: ma Farani, ʻo 10% wale nō o nā pūnaewele i loaʻa iā mākou, 7% o nā puke i hoʻololi ʻia iā mākou a ma waho o 500 mau kiʻiʻoniʻoni e puka mai ana i nā hale kiʻiʻoniʻoni i kēlā me kēia makahiki, 100 wale nō ka mea i wehewehe ʻia *… ʻAʻole maopopo iaʻu inā ʻike ʻo Lisa he makapō kona mau mākua? Kahaha ʻo Fernando. Akā ua hoʻomaopopo ʻo ia i mea e "hōʻike" ai i kekahi mea i kona mau mākua, pono ʻo ia e kau i loko o ko lākou mau lima!
* Wahi a ka Federation of the Blind and Amblyopes of France
Ua lilo au i quadriplegic. Akā no Luna, he makua wau e like me nā mea ʻē aʻe!
Romain, makua kāne o Luna, 7 makahiki
Ua loaʻa iaʻu kahi pōʻino ski i Ianuali 2012. ʻElua mahina hāpai koʻu hoa. Noho mākou ma Haute Savoie. He kanaka puhi ahi oihana au a he ha'uki loa. Ua hoʻomaʻamaʻa au i ka hau hau, ka holo ʻana i ke ala, me ka hoʻohui ʻana i ke kino e pono ai ke hoʻouna ʻia e kekahi mea puhi ahi. I ka manawa o ka ulia pōpilikia, loaʻa iaʻu kahi lua ʻeleʻele. I ka wā mua, ua ʻalo nā kauka i koʻu kūlana. ʻAʻole a hiki i ka MRI aʻu i ʻike ai ua pōʻino maoli ke kuamoʻo. I ka haʻalulu, haki koʻu ʻāʻī a lilo au i quadriplegic. No kaʻu hoa, ʻaʻole i maʻalahi: pono ʻo ia e hele ma hope o kāna hana i ka haukapila ma mua o ʻelua mau hola a i ʻole ke keʻena hoʻoponopono. ʻO ka mea pōmaikaʻi, ua kōkua nui ko mākou ʻohana a me nā hoaaloha iā mākou, me ka hana ʻana i nā huakaʻi. Ua hiki iaʻu ke hele i ka ultrasound mua. ʻO ia ka manawa mua i hiki iaʻu ke noho semi-noho me ka hāʻule ʻole i ka pōʻeleʻele. Ua uē au me ka naʻau a puni ka hoʻokolokolo. No ka hoʻoponopono hou ʻana, hoʻonoho wau iaʻu iho i ka pahuhopu e hoʻi i ka manawa e mālama i kaʻu kaikamahine ma hope o ka hānau ʻana. Ua lanakila au… i loko o ʻekolu pule!
“Ke nānā nei au i nā mea ma ka ʻaoʻao mālamalama”
Ua hiki iaʻu ke hele i ka lawe ʻana. Ua kauoha ka hui iā mākou e hana i ka ʻili a me ka ʻili lōʻihi ma ke kūlana semi-recumbent ma ke kākoʻo ʻana iā Luna me kahi uluna. ʻO ia kekahi o kaʻu mau mea hoʻomanaʻo! Ma ka home, ua paʻakikī iki: ʻaʻole hiki iaʻu ke hoʻololi iā ia, ʻaʻole hoʻi e ʻauʻau iā ia ... Akā ua hele au me kahi kōkua home i ke kahu hānai kahi aʻu i noho ai ma ka sofa no kahi hola maikaʻi me kaʻu kaikamahine a hoʻi mai ka makuahine i ke ahiahi. . Liʻiliʻi iki, ua loaʻa iaʻu ka mana kūʻokoʻa: ua ʻike kaʻu kaikamahine i kekahi mea, no ka mea, ʻaʻole ʻo ia i neʻe iki i ka wā aʻu i hoʻololi ai iā ia, ʻoiai inā hiki ke lōʻihi i 15 mau minuke! A laila loaʻa iaʻu kahi kaʻa kūpono. Hoʻomaka hou au i kaʻu hana ma ka hale paʻahao ʻelua makahiki ma hope o ka ulia pōpilikia, ma hope o kahi pākaukau. I ka makahiki 3 o kā mākou kaikamahine, ua haʻalele mākou me kona makuahine, akā ua noho maikaʻi mākou. Ua hoʻi ʻo ia i Touraine kahi i hele mai ai mākou, ua neʻe hoʻi au e hoʻomau i ka hānai ʻana iā Luna a ua koho mākou i ka mālama hui. Ua ʻike wale ʻo Luna iaʻu me ke kino kīnā. Nona, he makua wau e like me nā mea ʻē aʻe! Ke hoʻomau nei au i nā pilikia haʻuki, e like me kaʻu moʻokāki IG *. Pīhoihoi ʻo ia i kekahi manawa i ka nānā ʻana o ka poʻe ma ke alanui, ʻoiai inā he lokomaikaʻi mau lākou! He mea koʻikoʻi ko mākou pilina. I kēlā me kēia lā, makemake au e nānā i nā mea ma ka ʻaoʻao mālamalama: nui nā hana e hiki iaʻu ke hoʻololi e hana pū me ia. ʻO kāna manawa punahele? I nā hopena pule, aia iā ia ke kuleana e nānā i kahi kiʻi kiʻi lōʻihi: noho māua ma ka sofa e nānā! ”
* https: //www.instagram.com/roro_le_costaud/? hl = fr
"Pono mākou e hoʻololi i nā lako mālama keiki āpau. “
Olivia, 30 makahiki, elua keiki, Édouard, 2 makahiki, a me Louise, 3 mahina.
I koʻu makahiki 18, i ke ahiahi o ka lā 31 o Dekemaba, ua loaʻa iaʻu kahi pōʻino: ua hoʻohiolo au mai ka pā hale ma ka papahele mua o ka hale hoʻokipa ma Haute-Savoie. Ua haki ka hāʻule i koʻu iwi kuamoʻo. I kekahi mau lā ma hope o koʻu mālama ʻana i ka haukapila i Geneva, ua ʻike au he paraplegic au a ʻaʻole au e hele hou. Akā naʻe, ʻaʻole i hāʻule koʻu honua, no ka mea, ua kuhi koke wau iaʻu iho i ka wā e hiki mai ana: pehea wau e hālāwai ai i nā pilikia e kali nei iaʻu? I kēlā makahiki, ma waho aʻe o koʻu hoʻoponopono hou ʻana, ua lawe au i kaʻu mau papa makahiki hope loa a ua hāʻawi au i kaʻu laikini kaʻa i kahi kaʻa i hoʻololi ʻia. I Iune, ua loaʻa iaʻu kaʻu baccalaureate a ua hoʻoholo wau e hoʻomau i kaʻu aʻo ʻana ma Ile-de-France, kahi i noho ai koʻu kaikuahine, ʻumikūmākolu mau makahiki. Ma ke kula kānāwai wau i ʻike ai i koʻu hoa noho pū me aʻu i ʻumikūmālua makahiki.
I ke kakahiaka nui, hiki i ka'u hiapo ke ku iluna
Ua hoʻoholo mākou e loaʻa kahi pēpē mua i ka wā i ʻoi aku ka paʻa a i ʻole ka liʻiliʻi o kā mākou ʻoihana ʻelua. Ua hahai ʻia koʻu laki mai ka hoʻomaka ʻana e ka Montsouris institute, ka mea kūikawā i ke kākoʻo ʻana i nā poʻe me ke kino kīnā. No nā wahine ʻē aʻe, ʻaʻole ia maʻalahi! Hoʻokaʻaʻike mai kekahi mau makuahine iaʻu ma kaʻu blog e haʻi mai iaʻu ʻaʻole hiki iā lākou ke pōmaikaʻi mai ka hahai gynecological a i ʻole he ultrasound no ka mea ʻaʻohe papa hoʻohaʻahaʻa i kā lākou gynecologist! I ka makahiki 2020, he pupule! Pono mākou e ʻimi i nā lako mālama keiki kūpono: no ka moena, hana mākou i kahi hiʻohiʻona hoʻokiʻekiʻe i hana ʻia me ka puka hoʻoheheʻe! No nā mea ʻē aʻe, ua loaʻa iā mākou nā papaʻaina hoʻololi a me kahi ʻauʻau ʻauʻau kū kaʻawale kahi e hiki ai iaʻu ke hele me ka noho lima e ʻauʻau hoʻokahi. I ke kakahiaka nui, ua hiki i ka'u keiki hiapo ke ku iluna i hiki ia'u ke hopu iaia me ka maalahi a noho hookahi paha ma kona noho kaa. Akā ʻoiai he kaikuaʻana nui ʻo ia a komo i ka "weliweli ʻelua", hana ʻo ia e like me nā keiki āpau. Maikaʻi loa ʻo ia i ka mop ke noho hoʻokahi au me ia a me kona kaikaina i hiki ʻole iaʻu ke hopu iā ia. ʻOi aku ka maikaʻi o ka nānā ʻana ma ke alanui. ʻAʻohe oʻu hoʻomanaʻo i nā ʻōlelo leʻaleʻa, ʻoiai ke neʻe nei au me kaʻu "nui" a me ka liʻiliʻi i loko o kahi pēpē pēpē.
ʻO ka mea paʻakikī e noho pū me: invility!
Ma ka ʻaoʻao ʻē aʻe, paʻakikī loa ka noho ʻana o kekahi i kēlā me kēia lā. I kēlā me kēia kakahiaka, pono wau e haʻalele i 25 mau minuke ma mua e hele i ka hale hānai ma kahi kaʻa he 6 mau minuke. No ka mea, hele nā mākua i hoʻokuʻu i kā lākou keiki i ka noho maʻi "no ʻelua mau minuke". Eia naʻe, ʻaʻole kokoke wale kēia wahi, akā ʻoi aku ka laulā. Inā paʻahana ʻo ia, ʻaʻole hiki iaʻu ke hele ma kahi ʻē aʻe, no ka mea, ʻaʻohe oʻu wahi e puka ai i waho, ʻaʻole koʻu noho huila, ʻaʻole hoʻi kaʻu mau keiki. He mea koʻikoʻi ʻo ia iaʻu a pono wau e wikiwiki e hana e like me lākou! ʻOiai koʻu hemahema, ʻaʻole au e pāpā iaʻu iho i kekahi mea. I ka Pōʻalima, ʻo wau wale nō me lāua a lawe au iā lāua i ka waihona media. I nā hopena pule, hele mākou i ka ʻohana i ka holo kaʻa. Loaʻa iaʻu kahi paʻa paʻa i hoʻololi ʻia a ʻo ka mea nui aia ma kāna kaʻa kaulike. Maikaʻi! “