Ua loaʻa ʻo Luca i kahi maʻi laha ʻole: ua ʻike ʻia ʻo ROHHAD Syndrome ma 75 wale nō ka poʻe ma ka honua holoʻokoʻa.
Ua ʻike nā mākua e make kā lāua keiki mai ka lā ʻelua mau makahiki o ke keikikāne. Hoʻomaka koke ʻo Luka e hoʻonui wikiwiki. ʻAʻohe kumu o kēia: ʻaʻohe hoʻololi i ka papaʻai, ʻaʻohe maʻi hormonal. He weliweli ka hōʻailona - ROHHAD maʻi maʻi. ʻO ia ka momona nui i hana ʻia e ka hana ʻole o ka hypothalamus, ka hyperventilation o nā māmā, a me ka disregulation o ka ʻōnaehana autonomic. ʻAʻole hoola ʻia ka maʻi a hoʻopau i ka make i hoʻokahi haneli pākēneka o nā hihia. ʻAʻole hiki i kekahi o nā mea maʻi me ka ROHHAD ʻōuli ke ola i nā makahiki he 20.
Hiki i nā mākua o ke keikikāne ke ʻōlelo me ka make ʻana o kā lāua keiki. Ke - ʻaʻole ʻike kekahi. Akā ʻike maopopo ia ʻaʻole e ola ʻo Luka i ka makahiki. Ua lilo ka hōʻeha puʻuwai i ke keiki i mea maʻamau i ko lākou ola, a ua lilo ka makaʻu i hoa mau loa no ko lākou mau mākua. Akā ua hoʻāʻo lākou e hana i ke keikikāne i ke ola maʻamau, e like me kāna mau hoa. Ua hele ʻo Luka i ke kula (makemake nui ʻo ia i ka makemakika), hele i loko no nā haʻuki, hele i ka hui keaka a hoʻomana i kāna ʻīlio. Ua aloha nā kānaka āpau iā ia - nā kumu a me nā hoa papa. A aloha ke keikikāne i ke ola.
“ʻO Luka kā mākou bunny sunny. Loaʻa iā ia ka makemake ikaika a me kahi ʻano hoʻomākeʻaka. He kolohe loa ʻo ia, ”- pēlā ke kahuna o ka hale pule, kahi a Luka a me kona ʻohana i kamaʻilio ai nona.
Ua ʻike ke keiki e make ana ʻo ia. Akā ʻaʻole ia ke kumu o kona hopohopo. Ua ʻike ʻo Luka i ke ʻano kaumaha o kona mau mākua. A ʻo ke keiki maʻi maʻi, ka mea i manaʻo ma ka home i ka mālama nui ʻana, ua hoʻāʻo e hōʻoluʻolu i kona mau mākua.
"Mākaukau wau e hele i ka lani," i haʻi aku ai ʻo Luca i ka makuakāne. Ua hoʻopuka ka makua kāne o ke keiki i kēia mau ʻōlelo ma ka hoʻolewa o ke keiki. Ua hala ʻo Luka i hoʻokahi mahina ma hope o kona 11 mau makahiki. ʻAʻole hiki i ka pēpē ke hoʻomanawanui hou i ka puʻuwai.
"Ua kaʻawale ʻo Luka i kēia manawa mai ka ʻeha, me ka ʻeha ʻole. Ua hele ʻo ia i kahi honua ʻoi aku ka maikaʻi, - i ʻōlelo ʻo Angelo, ka makuakāne o ke keiki, e kū ana ma luna o ka pahu kupapaʻu, pena ʻia i nā kala a pau o ke ānuenue. Makemake ʻo Luka i ke aloha iā ia e ʻawaʻawa ʻole - aloha ʻo ia ke noho aliʻi ka ʻoliʻoli a puni ona. - He makana waiwai ke ola. E hauʻoli i kēlā me kēia minuke e like me kā Luke i hana ai. “
- Kiʻi kiʻi:
- facebook.com/angelo.pucella.9
I kona wā e ola ana, ua hoʻāʻo ʻo Luke e kōkua i ka poʻe. Ua hana ʻo ia i ka hana aloha i ke ʻano makua piha: ua kōkua ʻo ia i ka hoʻonohonoho ʻana i nā heihei e kōkua i nā poʻe maʻi nui, wehe wehe ʻo ia i kahi hale kūʻai iā ia iho, nā mea i loaʻa mai a mālama ʻia hoʻi nā ola o haʻi. ʻOiai ma hope o kona make ʻana, ua hāʻawi ke keiki i ka manaʻolana i nā poʻe ʻē aʻe. Ua lilo ʻo ia i mea manawaleʻa posthumous a laila hoʻopakele i ʻekolu mau ola, me kahi keiki hoʻokahi.
"I loko o kona ola pōkole, ua hoʻopā ʻo Luka i nā ola he nui, ua nui ka minoʻaka a me ka ʻakaʻaka. E ola mau ʻo ia i nā puʻuwai a me nā hoʻomanaʻo. Makemake au i ka honua āpau e ʻike i ko mākou haʻaheo e lilo i mau mākua o Luka. Aloha mākou iā ia ma mua o ke ola. E kuʻu keiki kāne maikaʻi, kupanaha, aloha au iā ʻoe, ”i kākau ai ka makuahine o Luka i ka lā o ke kanu kupapaʻu o kāna keiki aloha.