ʻO nā kaikamāhine a Distilbène
Agnes
“He kaikamahine DES wau, koʻu kaikuahine pū kekahi. Ua loaʻa iaʻu ka maʻi maʻi ʻili i koʻu mau makahiki 25, akā ʻaʻole maopopo ka loulou me DES. Ua loaʻa iaʻu ʻelima mau hāʻule mua ma mua o ka hele ʻana i ka hoʻokama. ʻAʻole mākou i hele i ka hopena o ke kaʻina hana (15 mau lā mai ka makana) no ka mea ua hāpai hou au a ʻaʻole hiki ke lawe i ka pilikia o ka hele ʻana i Kina ma koʻu mokuʻāina. Ua mālama ʻia nā mea āpau: hoʻomaha moe mai ka hoʻomaka ʻana o ka hāpai ʻana, e hōʻike ana i kahi haʻalele maʻi. Ua hoʻoweliweli au i ka hānau mua ʻana ma kahi o 18 mau pule o ka amenorrhea a ua hoʻopaʻa ʻia au i ka haukapila no 4 a me ka hapa mahina (me 2 mau mahina 200 km mai ka home a me hoʻokahi mahina 100 km).
Ua hānau ʻia ʻo Benoît ma kahi o 37 mau pule, i koʻu hoʻomaka ʻana e hele a piʻi hou i ke alapiʻi. He 45 knm a me 2,5 kg (ʻaʻole hiki ke ulu hou i loko o koʻu ʻōpū momona). Aia ʻo Benoît i ke olakino maikaʻi akā pono ke nānā ʻia no kona ʻōpū hema, e loaʻa paha ʻo ia i kahi hana ma 2 mau makahiki. ʻO ka mea ʻino i loko o kāna puʻupaʻa pili paha i ka mālama ʻana i ka wā o ka hānau mua ʻana i hoʻoweliweli ʻia kahi i hoʻemi ʻia ai au i ka wai amniotic e hoʻomaha ai i ka ʻōpū. A i ʻole he hopena o DES ma ke kolu o ka hanauna, ʻaʻole mākou ʻike ...
Ma hope o ke ono o ka hāʻule ʻana, he 13 mau pule koʻu hāpai ʻana. Hopu hou au a moe moe. Makemake wau e pale i ka haukapila e mālama i ka liʻiliʻi o Benoît nona ka 19 mahina. Ua neʻe mākou i kahi ʻāina hou ma hope o ka hoʻololi ʻana i ka ʻoihana. ʻO ka halemai pae 3 he 70 km wale nō ka mamao akā, ma kekahi ʻaoʻao, ʻaʻohe o mākou ʻohana a mau hoaaloha e kōkua mai iaʻu i koʻu wā e moe ana. Hoʻohiki ka hāpai ʻana e ʻoi aku ka paʻakikī o ka logistically… ”
Laure
"He kaikamahine distilbene wau, ʻo ia hoʻi iaʻu nā malformations, ectopic pregnancy, nā ʻano lapaʻau like ʻole a me nā ʻano like ʻole, inseminations, IVF… He kaikamahine kaʻu he 8 a me ka hapa makahiki i loaʻa iaʻu ma hope o kahi hakakā o Gehena. Ua hoʻoholo hoʻi au e hoʻomaka hou i kēia hakakā ʻelua makahiki i hala me ka manaʻolana e hana hou i ka hana mana. “
Virginia
"He kaikamahine wau na distilbene, i hānau ʻia i ka makahiki 1975, no laila i ka pau ʻana o kaʻu ʻōlelo ʻōlelo mai ka wā i pāpā ʻia ai kēia lāʻau lapaʻau i ka makahiki 1977. Ua loaʻa iaʻu kahi hāʻule ʻole a ʻekolu hāpai ectopic. Ma hope o ka hana wikiwiki i ka hana hou ʻana, aia wau i kēia manawa, me kaʻu kāne, i ke kaʻina hana hoʻopono.
He lālā wau o ka hui "Les filles DES" a he ʻoiaʻiʻo nō ka nui o nā wahine e pili ana i ka hahai pono ʻole ʻia i kā lākou ʻoihana, ʻaʻole maopopo kekahi i kekahi a i ʻole ke alo ʻana i ka hōʻole ʻana mai ka honua olakino. “
Valérie
"He 42 koʻu mau makahiki a ua lawe koʻu makuahine i ka distilbene i kona wā hāpai. I koʻu makahiki he 28, i koʻu hāpai mua ʻana, ua ʻike au ua loaʻa iaʻu ka maʻi maʻi maʻi ʻāʻī. A laila pono wau e hana i kahi hysterectomy… "
Anne :
"Mai koʻu wā liʻiliʻi, ʻike wau he kaikamahine DES wau no ka mea ua haʻi mai koʻu makuahine iaʻu a mālama ʻia wau e kahi kauka maʻi ma Toulouse. I ka makahiki 16, ua hōʻike ʻia kahi ultrasound mua i kahi kōpū T-shaped a me nā micro-polycystic ovaries. Ma hope, e haʻi ʻia iaʻu e pili ana i ka adenosis a, no nā makahiki, ua ʻoi aku ka liʻiliʻi o nā pōʻai maʻamau a me nā manawa ʻeha loa. “
Martine
"He kaikamahine distilbene wau a ua hiki iaʻu ke loaʻa nā keiki ʻelua. Ua moe au mai ke kolu o ka malama o ka hapai ana a ua hanau au i na mahina 7. Akā i kēia lā, loaʻa iaʻu nā kaikamahine ʻelua o 2 a me 5 mau makahiki i ke kino maikaʻi. No laila hiki ke loaʻa nā keiki me ka distilbene. “
Amelia
"He 33 au makahiki a, e like me nā kaikamahine DES he nui, loaʻa iaʻu nā anomalies genital (k-shaped uterus, ectropion in the cervix, endometriosis, dysplastic and polycystic ovaries, anovulatory cycles, etc.). I ka pōkole, he aha ka paʻakikī o ka hānau keiki !!! Ma hope o kekahi mau makahiki o ka paʻakikī, mai ka hana ʻana a hiki i ka hana, mai ka mālama ʻana a hiki i ka mālama ʻana, ua hoʻokō mākou i kahi pēpē hana mana, ʻoiai ʻo ka hāpai ʻana i kahi moe, weliweli loa, koʻikoʻi nui kahi i helu ʻia i kēlā me kēia lā.
Ua hānau mua ʻia kaʻu keiki ma 35 mau wiki hāpai, ʻo koʻu ʻōpū he baluna maoli i mākaukau e pahū… He kiʻiʻoniʻoni maoli ke ola me DES me nā wili a me nā huli, ʻaʻole ʻo ia e haʻalele iā mākou wale nō! “
Pascale
He 36 au makahiki a he 13 makahiki ka'u kaikamahine. Ua pilikia kaʻu huakaʻi e like me nā kaikamahine distilbene he nui: ʻelua hāʻule ʻole, ʻo ka mua ma 5 a me ka hapa mahina hāpai, kahi kaikamahine liʻiliʻi i hānau ola akā ʻaʻole i ola. Hoʻokahi makahiki ma hope o ka lua o ka hāʻule ʻana i ka 4 a me ka hapa mahina o ka hāpai ʻana, ua makemake ka gynecologist e ʻike i kahi e hiki mai ai a ma hope o ka hysterography, venography… ua loaʻa ka ʻōlelo hoʻoholo: distilbene!
No kaʻu kaikamahine, pono wau e hoʻopaʻa i ke kaula i wehe ʻia no ka nui o nā ʻokiʻoki, a ua hānau ʻia ʻo ia ma mua o ʻelima mau pule. Paʻakikī loa koʻu hāpai ʻana: kahe koko, ʻokiʻoki, moe moe mai ka hoʻomaka a hiki i ka pau ʻana, ʻaʻole hoʻi e haʻi i ka noho mau ʻana i ke keʻena. A ma laila, ua aʻo wale au ua loaʻa iaʻu ka dysplasia o ka pūpū a pono wau e hana. Pono ka poʻe kuleana e uku no ka poino a lākou i hana ai i 30 mau makahiki i hala aku nei a no ka poino a lākou e hana nei. “