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He kauka ʻo Hanna me 40 mau makahiki o ka ʻike hana. Nui kona ʻike i ka pono o nā hoʻokolohua maʻamau. ʻAʻole kēia i pale iā ia mai ka maʻi kanesa ovarian, akā naʻe. Ua ulu ka maʻi i loko o kekahi mau mahina.
- - I Mei 2018, lohe au ua loaʻa iaʻu ka maʻi maʻi ovarian - hoʻomanaʻo ʻo Ms Hanna. - ʻEhā mau mahina ma mua, ua hoʻopaʻa ʻia au i kahi hoʻokolohua transvaginal ʻaʻole i hōʻike ʻia he pathology
- E like me ka ʻae ʻana o ke kauka, ʻeha iki wale ʻo ia i ka ʻōpū a me ke kinoea. Akā naʻe, ua loaʻa iā ia kahi manaʻo maikaʻi ʻole, no laila ua hoʻoholo ʻo ia e hana i kahi hōʻailona kikoʻī
- ʻIke ʻia ka maʻi maʻi ovarian i kēlā me kēia makahiki e 3. 700 wahine Polani. Kapa pinepine ʻia ka maʻi maʻi ʻo "silent killer" no ka mea ʻaʻole ia e hōʻike i nā hōʻailona kikoʻī i ka wā mua
- ʻAʻole ʻo ka maʻi maʻi ovarian he hoʻopaʻi make. ʻO ka hoʻomohala ʻana o ka pharmacology ʻo ia ka mea hiki ke kapa pinepine ʻia ka maʻi maʻi a hiki ke mālama ʻia. Hāʻawi ka PARP inhibitors i ka manaʻolana no kahi lapaʻau maikaʻi
- Hiki ke loaʻa nā ʻike hou aku ma ka ʻaoʻao home Onet.
ʻAʻole ʻike ʻia nā hōʻailona…
He kauka ʻo Hanna ma hope o ka makahiki 60, nona nā hoʻokolohua transvaginal makahiki ke kumu no ka pale ʻana i ka maʻi oncological. No laila, ʻo ka hōʻoia ʻana o ka maʻi maʻi ovarian, he mea kāhāhā nui iā ia. ʻOi aku ka nui no ka mea ʻaʻole kikoʻī nā hōʻailona a maʻamau nā hopena morphology. ʻO kāna mea i manaʻo ai he ʻeha iki o ka ʻōpū a me ka pehu ʻana, me ka ʻole o ke kaumaha. Akā naʻe, hopohopo ʻo ia i kekahi mea, no laila ua hoʻoholo ʻo ia e hana hou i nā hoʻokolohua.
ʻElua mau makahiki i hala aku nei, i Mei 2018, ua lohe au ua loaʻa iaʻu ka pae kiʻekiʻe IIIC ovarian cancer. ʻAʻole hiki iaʻu ke pale aku iā ia, ʻoiai ʻaʻole wau i haʻalele i kaʻu mau hoʻokolohua pale gynecological. Ua koi ʻia au no nā diagnostics hou e ka ʻeha maʻamau, ʻaʻole nui loa i ka hypochondrium akau. ʻEhā mau mahina ma mua, ua hana au i kahi hoʻokolohua transvaginal ʻaʻole i hōʻike ʻia he pathology. Ua ulu ka constipation i ka manawa. Ua manaʻo wau i ka hopohopo mau. Ua hele mai kekahi kukui ʻulaʻula ma koʻu poʻo. Ua ʻike au ʻaʻole ia e like me ka mea e pono ai, no laila ua ʻimi au i ke kumuhana, e ʻimi ana i ke kumu o ia mau hōʻailona. Ua hoʻomaka mālie koʻu mau hoa hana e mālama iaʻu e like me ka hypochondriac, me ka nīnau ʻana, "He aha kāu e ʻimi nei ma laila? Ma hope o nā mea a pau, he mea maʻamau nā mea a pau! ». Kū'ē i nā manaʻo a pau, ua hana hou au i nā ho'āʻo. I ka wā o ka ultrasound o ke pelvis liʻiliʻi, ua ʻike ʻia aia kekahi mea e hoʻopilikia ai i ka ovary. ʻO ka nui o ka pōʻino i hōʻike waleʻia e ka laparoscopy me ka hoʻololiʻana i ka wehe pihaʻana o ka'ōpū a me ka hana 3-hola i hanaʻia e ka hui o prof. Panka - kaʻana like i kona ʻike me ke kauka.
Hāʻawi ʻia ka ʻike o ka maʻi maʻi ovarian i kēlā me kēia makahiki ma kahi kokoke. 3 tausani. 700 Polani wahine, o ka nui o ka 80 pakeneka. aia ma luna o 50 makahiki. Akā naʻe, ʻaʻole kēia manaʻo ʻaʻole pili ka maʻi i nā wahine ʻōpio a me nā kaikamahine pū kekahi. Kapa pinepine ʻia ka maʻi ʻaʻai ovarian ʻo "silent killer" no ka mea ʻaʻohe ona hōʻailona kikoʻī i ka wā mua. Aia ia ma ka ʻelima o ka papa inoa o nā neoplasms malignant i ʻike pinepine ʻia ma ka honua. Piʻi nui ka pilikia o kona ulu ʻana i nā wahine kaumaha genetically, ʻo ia hoʻi me ka hoʻololi ʻana i nā genes BRCA1 a i ʻole BRCA2, e like me ka 44% o nā wahine. ʻO nā mea lawe i ka gene defect e hoʻomohala i kahi maʻi koʻikoʻi ...
Ma hope o ka lohe ʻana i ka ʻike, ua loli nui i koʻu ola. Aia kekahi mau mea aʻu e loiloi hou ai. I ka wā mua, ua hopohopo nui au e haʻalele wau i kaʻu mau mea aloha. Me ka manawa naʻe, ua hoʻoholo wau ʻaʻole wau e haʻalele a e hakakā wau noʻu iho, no ka mea, loaʻa iaʻu kahi mea e ola ai. I koʻu hoʻomaka ʻana i ka hakakā, ua like wau i loko o ke apo kahi i loaʻa ai ka hoa paio i ka maʻi maʻi ovarian - ka maʻi maʻi gynecological ʻino loa ma Polani.
- Kuhihewa nā wāhine no nā pilikia digestive. Ua lohi pinepine no ka mālama ʻana
Manaolana Hou i ka Lapaʻau ʻana i ka maʻi maʻi ovarian - ʻoi aku ka maikaʻi ma mua
Mahalo i ka ʻenehana kiʻekiʻe a me ka holomua noiʻi, ʻaʻole pono ka maʻi maʻi ovarian i ka hoʻopaʻi make. ʻO ka hoʻomohala ʻana i ka lāʻau lapaʻau ʻo ia ka mea hiki ke kapa ʻia ka maʻi maʻi maʻi a hiki ke mālama ʻia a hiki ke mālama ʻia.
Hāʻawi ka PARP inhibitors i kahi manawa kūpono no ka lāʻau maikaʻi o ka maʻi maʻi ovarian. Ua hōʻike ʻia nā lāʻau lapaʻau i hōʻoia i ko lākou pono, e hāʻawi ana i nā hopena kupaianaha i ka hoʻonui ʻana i ke ola o nā mea maʻi me ka maʻi maʻi ovarian, i hōʻike ʻia ma nā ʻaha kūkā olakino nui honua - ka American and European Society of Clinical Oncology - ASCO a me ESMO. ʻO ka mea mele Polani kaulana ʻo Kora, i loaʻa i ka maʻi maʻi ovarian, i hakakā no ka hoʻihoʻi ʻana o kekahi o lākou - olaparib. ʻO ka mea pōʻino, aia kona maʻi maʻi ma kahi pae kiʻekiʻe loa i nalowale ai ka mea pena i kēia hakakā like ʻole ma Iulai 28, 2018. Me kāna mau hana, akā naʻe, ua hāʻawi ʻo ia i ka uku hou ʻana i ka lāʻau lapaʻau, ʻoiai ʻo ka nui o nā pono lapaʻau, e uhi mau ana i kahi ʻano. pūʻulu haiki o nā maʻi, ʻo ia hoʻi ka poʻe i loaʻa i ka maʻi kanesa relapse.
I ka makahiki 2020, i ka wā o kekahi o nā ʻaha kūkā olakino - ESMO, ua hōʻike ʻia nā hopena o ka noiʻi no ka lāʻau lapaʻau olaparib i hoʻohana ʻia ma kahi mua o ka maʻi, ʻo ia hoʻi i nā mea maʻi me ka maʻi maʻi ovarian hou. Hōʻike lākou ma kahi kokoke i ka hapalua o nā wahine i ke kūlana e like me Ms Hanna e noho me ka ʻole o ka holomua ʻana no 5 mau makahiki, ʻo ia ka nui o 3,5 mau makahiki ma mua o kēia manawa i hoʻohālikelike ʻia me ka nele o ka mālama mālama. Manaʻo ka nui o nā kauka he ʻano hoʻololi i ka mālama ʻana i ka maʻi maʻi ovarian.
Ua hoʻomaka koke ʻo Kauka Hanna ma hope o ka lohe ʻana i ka maʻi maʻi e hahai i ke aʻo ʻana o nā molekole hou i ka maʻi maʻi ovarian. A laila ua loaʻa iā ia nā hopena hoʻohiki o ka hoʻokolokolo SOLO1 me olaparib, ka mea i koi iā ia e hoʻomaka i ka mālama ʻana.
He mea kupaianaha nā hopena aʻu i ʻike ai! Ua hāʻawi mai iaʻu i ka manaʻolana nui ʻo ka maʻi maʻi - ʻaʻole ʻo ka maʻi ovarian ka hopena o koʻu ola. Naʻu iho i kuhikuhi i nā pūʻolo mua ʻelua o ka lāʻau lapaʻau a uku no ka mālama ʻana no kekahi mau mahina me ke kākoʻo o koʻu ʻohana a me koʻu mau hoaaloha no ka mea ua hōʻole ke Kuhina Ola i ke kālā. Laki wau i ke kākau inoa ʻana i kahi papahana hoʻokomo mua ʻana i ka lāʻau lapaʻau i kālā ʻia e ka mea hana. Ua lawe au iā Olaparyb no 24 mau mahina. Aia au i kēia manawa i ke kala piha. Ua maikaʻi loa koʻu manaʻo. ʻAʻohe oʻu hopena ʻaoʻao. Ua ʻike au inā ʻaʻole no kēia lapaʻau, ʻaʻole paha au e noho hou ma laila… I kēia manawa, ʻoihana wau i ka ʻoihana, hoʻāʻo wau e pāʻani mau i nā haʻuki a hauʻoli i kēlā me kēia manawa o koʻu "ola hou" me kaʻu kāne. ʻAʻole au e hoʻolālā hou i kekahi mea, no ka mea, ʻaʻole wau i ʻike i ka mea e hiki mai ana i ka wā e hiki mai ana, akā hauʻoli nui wau i kaʻu mea i loaʻa. Ola.
ʻO Mrs. Hanna, ma ke ʻano he kauka maʻi a mākaukau, ʻoiai ʻo ka ʻike o ka cytology a me ka nānā ʻana i ka umauma, ʻaʻole nui ka nānā ʻana i ka maʻi kanesa ovarian. E like me kekahi maʻi kanesa, he mea nui ka "makaʻala oncological" a me ka hoʻolohe ʻana i kou kino, ʻoiai ʻaʻohe ala kūpono e ʻike mua ai i ka maʻi maʻi ovarian. I ka hihia o nā mea maʻi i ʻike mua ʻia, he mea nui ia e hōʻoia i ka loaʻa ʻana o nā mea hana diagnostic maikaʻi loa, a me ka hana ʻana i nā hoʻokolohua no nā mutations ma BRCA1 / 2 genes i nā wahine maʻi. ʻO ka hoʻoholo ʻana i kēia mutation, ʻo ka mea mua, hiki ke hoʻololi i ke koho ʻana i ka lāʻau lapaʻau kūpono no ka mea maʻi, a ʻo ka lua, hiki ke kākoʻo i ke kaʻina hana o ka ʻike mua ʻana o nā poʻe mai ka pūʻulu pilikia (ka ʻohana o ka mea maʻi) a waiho iā lākou ma lalo o ka mālama oncological mau.
Maʻalahi: No ka loaʻa ʻana o ka ʻike e pili ana i ka hoʻololi ʻana, hiki iā mākou ke pale i ko mākou ʻohana mai ka ʻike ʻana i ka maʻi maʻi maʻi lohi loa. E like me kā Kauka Hanna i hoʻokūpaʻa ai, ke paʻakikī nei mākou me ka mālama ʻole ʻana i kēia maʻi maʻi, ʻo ia hoʻi: ka nele o nā kikowaena kikoʻī, kikowaena kikowaena, hiki ke loaʻa i nā diagnostics molecular a me ka mālama ʻana, a i ka hihia o ka maʻi maʻi ovarian, nā pule a i ʻole nā lā. helu…
Ma muli o kaʻu ʻike ponoʻī, ʻike wau i ke koʻikoʻi o ka hoʻolauna ʻana i nā kikowaena lapaʻau ovarian cancer, e hāʻawi ana i ka hoʻomaʻamaʻa piha ʻana a me nā diagnostics, ma mua o ka genetic. I koʻu hihia, ua koi ʻia au e hana i nā hoʻokolohua kikoʻī ma nā kikowaena like ʻole ma Warsaw. No laila ʻaʻole hiki ke koho ʻia no nā poʻe maʻi mai nā kūlanakauhale liʻiliʻi, ʻoi aku ka paʻakikī o ka hana ʻana i ka maʻi wikiwiki ... Pono pū kekahi e uku hou i nā lāʻau lapaʻau hou, e like me ka olaparib, ʻo ia ke kī i ka mālama ʻana i ke kala ʻana o ka maʻi i ka wā mua. o ke kaʻina hana. Hāʻawi nā hoʻāʻo genetic iā mākou i ka manawa kūpono no ka mālama pono ʻana, a hiki i kā mākou mau kaikamahine a me nā moʻopuna ke hoʻoikaika i ka prophylaxis mua.
ʻO Dr Hanna, i aʻo ʻia e kona ʻike ponoʻī, ʻoi aku ka nui o ka noiʻi ʻana, ʻoiai inā ʻaʻole hōʻike ka morphology kumu a me ka cytology i kekahi mea hoʻopilikia. ʻOi loa inā ʻike ʻoe i ka ʻeha e pili ana i ka constipation a me ka flatulence. ʻAʻole pono e poina nā maʻi e hana i ka ultrasound transvaginal a nānā i ke kiʻekiʻe o nā hōʻailona tumo CA125.
- Ka mea pepehi i na wahine Polani. "ʻAʻole hiki iā mākou ke ʻike mua i ke kanesa"
Ma hea e hele ai no ke kōkua?
Hoʻopili mau ʻia ka ʻike o ka maʻi kanesa me ka makaʻu a me ka hopohopo. ʻAʻohe mea kupanaha, i ka hopena, i ka pō, ke alo nei nā mea maʻi i ka ʻoiaʻiʻo he mau mahina a he mau pule paha lākou e ola ai. Ua like ia me aʻu. ʻOiai he kauka wau, ua hāʻule koke mai ka nūhou e pili ana i ka maʻi ma luna oʻu a me ka manaʻo ʻole ... Me ka manawa, akā naʻe, ua ʻike wau ʻo ka mea waiwai i kēia manawa ʻo ia ka manawa a pono wau e hoʻomaka e hakakā no koʻu ola. Ua maopopo iaʻu ka mea e hele ai a me kaʻu mea e mālama ai. Akā, pehea ka poʻe maʻi i ʻike ʻole i kahi e ʻimi ai i ke kōkua? ʻO ka # Coalition for Life o ka poʻe me ka BRCA 1/2 mutation, nona ka manaʻo e hoʻolalelale a hoʻomaikaʻi i ka maikaʻi o ke kaʻina diagnostic a me ka therapeutic o nā maʻi, a pēlā e hoʻolōʻihi ai i ko lākou ola, e hele mai e kōkua i nā wahine e loaʻa ana i ka maʻi maʻi ovarian.
# CoalitionForLife no ka poʻe me ka BRCA1 / 2 mutation
Hōʻike nā hoa hui i ʻekolu postulates koʻikoʻi.
- Loaʻa maʻalahi i nā diagnostics molecular Next-Generation Sequencing (NGS). ʻO ka hoʻonui ʻia ʻana o ka ʻike ʻepekema e pili ana i nā hōʻailona tumora pono e kākoʻo i ka hoʻomohala ʻana i ka lāʻau lapaʻau pilikino, ʻo ia hoʻi, ka lāʻau lapaʻau i kūpono i ka mea maʻi. ʻO ka Next Generation Sequencing kahi mea hana diagnostic hou. No laila, pono e hoʻonui i ka nui o nā hoʻokolohua molecular i hana ʻia ma nā kikowaena e hana ana i nā ʻokiʻoki i ka maʻi maʻi ovarian. ʻAʻole i emi iki ka hana ʻana i kahi Pūnaewele Hoʻomanawanui Pūnaewele (IKP), kahi e hōʻiliʻili ʻia ai ka ʻikepili i nā hopena āpau o ka genetic, pathomorphological a me nā hoʻāʻo molecular i kahi hoʻokahi.
- Hoʻomaikaʻi i ka maikaʻi a me ka loaʻa o ka lāʻau lapaʻau piha. He mea koʻikoʻi ka mālama piha ʻana i ka mea maʻi i loaʻa i ka maʻi kanesa ovarian. Hāʻawi ʻia kahi manawa e hoʻomaikaʻi ai i ka maikaʻi o kā lākou mālama ʻana ma ka hoʻolauna ʻana i kahi hui multidisciplinary o nā loea i nā keʻena. ʻO ka hoʻonā ʻana paha ʻo ia ka hoʻokō ʻana i nā hāmeʻa tele-medicine.
- ʻO ka hoʻohana ʻana i nā ʻano lapaʻau kūpono, e like me nā kūlana ʻEulopa, i ka wā mua loa o ka maʻi i nā wahine e loaʻa ana i ka maʻi maʻi ovarian.
Ke hoʻāʻo nei nā hoa hui e loaʻa ka uku o ka lāʻau lapaʻau i mea e hōʻoia ai i ka mālama ʻana i ka wā mua loa o ka maʻi - e like me nā kūlana ʻEulopa o nā ʻano lapaʻau.
Loaʻa nā ʻike kikoʻī e pili ana i ka maʻi maʻi ovarian a me nā hana a nā hoa hui ma ka pūnaewele www.koalicjadlazycia.pl. Ma laila, ʻike pū nā poʻe maʻi maʻi maʻi ovarian i kahi leka uila kahi e loaʻa ai ke kōkua kūpono.
E heluhelu pū hoʻi:
- "ʻO ka holomua o ka maʻi maʻi ovarian i nā wahine Polani ʻoi aku ka kiʻekiʻe ma mua o ke Komohana" Aia nā manawa no ka mālama pono ʻana.
- ʻO nā hōʻailona mua o ka maʻi kanesa he atypical. "75 pakeneka o nā mea maʻi e hele mai iā mākou ma kahi kūlana kiʻekiʻe"
- ʻO ka maʻi ʻino. ʻAʻohe mea ʻeha no ka manawa lōʻihi, ua like nā hōʻailona me nā pilikia o ka ʻōpū
Ma mua o ka hoʻohana ʻana, e heluhelu i ka lau, i loaʻa nā hōʻailona, contraindications, ka ʻikepili e pili ana i nā hopena ʻaoʻao a me ka dosage a me ka ʻike e pili ana i ka hoʻohana ʻana i ka lāʻau lapaʻau, a i ʻole e nīnau i kāu kauka a lāʻau lapaʻau paha, no ka mea, ʻo kēlā me kēia lāʻau i hoʻohana pono ʻole ʻia he mea hoʻoweliweli ia i kou ola a i ʻole. olakino. Pono ʻoe i kahi kūkākūkā lāʻau a i ʻole kahi leka uila? E hele i ka halodoctor.pl, kahi e loaʻa ai iā ʻoe ke kōkua pūnaewele - wikiwiki, palekana a haʻalele ʻole i kou home. I kēia manawa hiki iā ʻoe ke hoʻohana i ka e-consultation no ka manuahi ma lalo o ka National Health Fund.