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I koʻu ʻike ʻana i ka hānau ʻana o kaʻu kaikamahine, inu wau i ka whiskey. ʻO ka 9 am a ʻo ka haʻalulu o ka hoʻolaha ʻana i ke alo o ka pōʻino o Mina, kaʻu wahine, ʻaʻohe mea ʻē aʻe i loaʻa iaʻu ma mua o ka haʻalele ʻana i ka hale hānai. Ua ʻōlelo au i ʻelua a ʻekolu mau huaʻōlelo naʻaupō, a "Mai hopohopo, e mālama mākou", a holo wikiwiki wau i ka pā…
A laila huki au iaʻu iho. He ʻelua kaʻu mau keiki kāne, he wahine i aloha ʻia, a ʻo ka makemake nui e lilo i makua kāne i manaʻo ʻia, ʻo ia ka mea e ʻike i ka hopena i kā mākou "pilikia" ʻo Yasmine. Ua loaʻa i kā mākou pēpē ka maʻi maʻi Down. Ua haʻi mai ʻo Mina iaʻu, me ka hoʻomāinoino. Ua haʻi ʻia aku ka lono iā ia i kekahi mau minuke ma mua e nā kauka, i loko o kēia hale maʻi hānai ma Casablanca. ʻAe, ʻike ʻo ia, ʻo wau a me ko mākou ʻohana paʻa i ka hanai ʻana i kēia keiki ʻokoʻa.
ʻO kā mākou pahuhopu: e hānai iā Yasmine e like me nā keiki āpau
I ka manaʻo o nā poʻe ʻē aʻe, ʻo ka maʻi maʻi Down he kīnā, a ʻo kekahi mau lālā o koʻu ʻohana ka mea mua i ʻae ʻole. Akā ʻelima mākou, ʻike mākou pehea e hana ai! ʻOiaʻiʻo, no kāna mau kaikunāne ʻelua, ʻo Yasmine mai ka hoʻomaka ʻana i ke kaikuahine liʻiliʻi aloha, e pale ai. Ua koho mākou ʻaʻole e haʻi iā lākou e pili ana i kona kīnā. Ua hopohopo ʻo Mina e hānai mākou i kā mākou kaikamahine e like me ke keiki "maʻamau". A ua pololei ʻo ia. ʻAʻole hoʻi mākou i wehewehe i kā mākou kaikamahine. Inā i kekahi manawa, ʻike maopopo ʻia, ua ʻokoʻa kona ʻano naʻau a i ʻole kāna hana ʻino i hoʻokaʻawale iā ia mai nā keiki ʻē aʻe, ua makemake mau mākou e hana iā ia e hahai i kahi papa maʻamau. Ma ka hale mākou e pāʻani like ai, hele i nā hale ʻaina a hele hoʻomaha. Maluhia i loko o ko mākou pūniu ʻohana, ʻaʻohe mea i hoʻoweliweli iā ia a nānā ʻē paha iā ia, a makemake mākou i ka noho like ʻana ma waena o mākou, me ka manaʻo e pale aku iā ia e like me ka mea e pono ai. Hiki i ka trisomy o ke keiki ke pahū nā ʻohana he nui, akā ʻaʻole na mākou. ʻO ka mea ʻē aʻe, ua lilo ʻo Yasmine i kelu ma waena o mākou āpau.
Ua hoʻokipa ʻia ʻo Yasmine ma kahi hale hānai. ʻO ke kumu nui o kā mākou manaʻo noʻonoʻo ua loaʻa iā ia nā manawa like me kona mau kaikunāne. Ua hoʻomaka ʻo ia i kona ola kaiaulu ma ke ala maikaʻi loa. Ua hiki iā ia, ma kona wikiwiki, ke hōʻuluʻulu i nā ʻāpana mua o ka puzzle a i ʻole ke hīmeni ʻana i nā mele. Kokua ʻia e ka ʻōlelo lapaʻau a me nā mākau psychomotor, ua ola ʻo Yasmine e like me kona mau hoa, e hoʻomau i kāna holomua. Hoʻomaka ʻo ia e hoʻonāukiuki i kona mau kaikunāne, a mākou i hoʻopau ai i ka wehewehe ʻana i ka hemahema e pili ana iā ia, me ka ʻole o ka hele ʻana i nā kikoʻī. No laila ua hoʻomanawanui lākou. I ka hoʻihoʻi ʻana, ua hōʻike ʻo Yasmine i nā pane he nui. ʻAʻole ʻokoʻa ka maʻi ʻo Down i kahi keiki, a ʻo kā mākou wikiwiki loa, e like me nā keiki o kona mau makahiki, ʻike i ka lawe ʻana i kona wahi a i ʻole koi iā ia, a hoʻomohala i kona ʻano maoli a me kona ʻano nani.
ʻO ka manawa no ke aʻo mua
A laila, ʻo ia ka manawa e aʻo ai i ka heluhelu, kākau, helu… ʻAʻole kūpono nā ʻoihana kūikawā iā Yasmine. Ua pilikia ʻo ia i ka hui ʻana o nā poʻe "e like me ia" a ua ʻoluʻolu ʻole mākou, no laila ua ʻimi mākou i kahi kula "maʻamau" ponoʻī e ʻae iā ia. Na Mina i kōkua iā ia ma ka home i pae. ʻOi aku ka lōʻihi o kona aʻo ʻana ma mua o nā mea ʻē aʻe. No laila, hana lāua a hiki i ka pō. ʻO ka hoʻomaʻamaʻa ʻana i nā mea e ʻoi aku ka nui o ka hana no kahi keiki me Down syndrome, akā ua hiki i kā mākou kaikamahine ke lilo i haumāna maikaʻi ma kāna kula kula mua. I ia manawa mākou i hoʻomaopopo ai he mea hoʻokūkū ʻo ia. E hoʻohāhā iā mākou, e lilo i haʻaheo, ʻo ia ka mea e hoʻoikaika ai iā ia.
Ma ke kulanui, ua lilo ka pilina i mea paʻakikī. Ua lilo ʻo Yasmine i bulimic. ʻO ka ʻinoʻino o nā ʻōpio, pono ʻo ia e hoʻopiha i ka hakahaka e nahu mai ana iā ia, ʻo kēia mau mea a pau i hōʻike ʻia iā ia iho me he ʻano hopohopo nui. ʻO kāna mau hoa kula haʻahaʻa, e hoʻomanaʻo ana i ka loli o kona naʻau a i ʻole nā lau o ka huhū, mālama iā ia i waho, a ua pilikia ʻo ia. Ua hoʻāʻo ka poʻe ʻilihune i nā mea āpau, ʻoiai e kūʻai i kā lākou hoaaloha me nā mea ʻono, makehewa. ʻAʻole lākou ʻakaʻaka iā ia, ua holo lākou mai ona aku. ʻO ka mea pōʻino loa i kona piha ʻana i ka 17, i kona kono ʻana i ka papa holoʻokoʻa i kona lā hānau a he kakaikahi wale nō nā kaikamahine i hele mai. Ma hope o kekahi manawa, haʻalele lākou e hele wāwae i ke kūlanakauhale, e pale ana iā Yasmine e hui pū me lākou. Ua hoʻoholo ʻo ia e "noho hoʻokahi kahi kanaka maʻi maʻi Down".
Ua hewa mākou no ka wehewehe ʻole ʻana i kona ʻokoʻa: ua hiki paha iā ia ke hoʻomaopopo maikaʻi a ʻoi aku ka maikaʻi o ka hoʻokō ʻana i ka manaʻo o nā poʻe ʻē aʻe. Ua kaumaha ke kaikamahine ʻilihune i ka hiki ʻole ke ʻakaʻaka me nā keiki i kona mau makahiki. Ua loaʻa i kona kaumaha ka hopena maikaʻi ʻole i kāna mau hopena kula, a noʻonoʻo mākou inā ʻaʻole mākou i hoʻonui iki - ʻo ia hoʻi, nīnau nui.
A ʻo ka bac, me ka hanohano!
Huli mākou i ka ʻoiaʻiʻo. Ma mua o ka uhi ʻana a haʻi i kā mākou kaikamahine he "ʻokoʻa" ʻo ia, ua wehewehe ʻo Mina iā ia i ke ʻano o Down syndrome. Ma mua o ka hoʻopūʻiwa ʻana iā ia, ua hāpai kēia hōʻike i nā nīnau he nui iā ia. Ma hope ua hoʻomaopopo ʻo ia i ke kumu o kona manaʻo ʻokoʻa, a makemake ʻo ia e ʻike hou aku. ʻO ia ka mea nāna i aʻo mai iaʻu i ka unuhi ʻana o "trisomy 21" ma ka ʻōlelo ʻAlapia.
A laila, hoʻolei ʻo Yasmine iā ia iho i ka hoʻomākaukau ʻana i kāna baccalaureate. Ua hele mākou i nā kumu pilikino, a ʻo Mina, me ka mālama nui, hele pū me ia i kāna mau hoʻoponopono. Ua makemake ʻo Yasmine e hoʻokiʻekiʻe i ka pahuhopu, a ua hana ʻo ia: 12,39 awelika, Fair enough mention. ʻO ia ka haumāna mua loa me ka maʻi maʻi Down ma Morocco i loaʻa kāna baccalaureate! Ua hele wikiwiki a puni ka ʻāina, a ua makemake ʻo Yasmine i kēia kaulana liʻiliʻi. Aia kekahi hana e hoʻomaikaʻi iā ia ma Casablanca. Ma ka microphone, ʻoluʻolu a pololei ʻo ia. A laila, kono akula ke aliʻi iā ia e aloha i kona holomua. I mua ona, ʻaʻole ʻo ia i hoʻopā. Haʻaheo mākou, akā ua noʻonoʻo mākou i ke kaua hou, ʻo ia hoʻi o ke kula kulanui. Ua ʻae ke kula o ke aupuni a me ka ʻoihana waiwai ma Rabat e hāʻawi i kahi manawa.
I kēia lā, moeʻuhane ʻo ia e hana, e lilo i "wahine ʻoihana". Ua hoʻokomo ʻo Mina iā ia ma kahi kokoke i kāna kula a aʻo iā ia e mālama i kāna kālā. I ka wā mua, ua kaumaha nui ka mehameha iā ia, akā ʻaʻole mākou i hāʻawi a noho ʻo ia ma Rabat. Ua hoʻomaikaʻi mākou iā mākou iho no kēia hoʻoholo, ka mea i uhaʻi mua i ko mākou naʻau. I kēia lā e hele ana kā mākou kaikamahine, he mau hoaaloha kāna. ʻOiai ke hoʻomau nei ʻo ia e hōʻike i ka huhū ke manaʻo ʻo ia i kahi priori maikaʻi ʻole iā ia, ʻike ʻo Yasmine pehea e hōʻike ai i ka lōkahi. Lawe ʻia ka ʻōlelo piha i ka manaʻolana: aia wale nō ma ka makemakika ka ʻokoʻa he unuhi!