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ʻO Cystic Fibrosis (Cystic Fibrosis) - Nā Paena o nā Pūʻulu hoihoi a me ke kākoʻo
E a'o hou e pili ana i nā microsic fibrosis, Hāʻawi ʻo Passeportsanté.net i kahi koho o nā hui a me nā kahua aupuni e pili ana i ke kumuhana o ka cystic fibrosis. Hiki iā ʻoe ke loaʻa ma laila Additional Information a kāhea aku i nā kaiāulu a i ʻole nā hui kākoʻo e ʻae iā ʻoe e aʻo hou aʻe e pili ana i ka maʻi.
palena'āina
Palani
ʻO ka hahau ʻana i ka cystic fibrosis
Hana ʻia ma 1965, manaʻo kēia hui e kākoʻo i nā poʻe maʻi a me ko lākou ʻohana ma kahi o 4 mau misionari: hoʻōla, mālama, ola maikaʻi, a hoʻonui i ka ʻike. Kākoʻo ikaika ʻo ia i ka noiʻi.
ʻAhahui Gregory Lemarchal
Hoʻokumu ʻia ma 2007 ma hope o ka make ʻana o ka mea pena ʻo Grégory Larchal e loaʻa ana i ka cystic fibrosis, manaʻo kēia hui e hoʻomaikaʻi i ka hōʻoluʻolu a me ka maikaʻi o ke ola o nā mea maʻi a hoʻonui i ka ʻike no ka hāʻawi ʻana i ke kino.
Association-gregorylearchal.org
Kanaka
Kanaka Cystic Fibrosis Foundation
Hoʻokumu ʻia i ka makahiki 1960, hāʻawi kālā kēia kumu i ka noiʻi ʻana i ka cystic fibrosis. ʻO ka pahuhopu o ke kahua ʻo ia ka hoʻolako ʻana i nā kumuwaiwai a me nā ʻike e mālama maikaʻi a mālama i ka maʻi. Loaʻa nā puke ma ka pūnaewele a i ʻole ma ke kauoha, ma ka ʻōlelo Pelekania a me ka Palani cystic fibrosis.ca
Cystic Fibrosis Quebec
Ke manaʻo nei kēia hui e kōkua i ka poʻe me ka cystic fibrosis ma Quebec, i ʻaelike me ka Canadian Cystic Fibrosis Foundation.
aqfk.qc.ca
Komite Panalaau no na makua me ka ma'i fibrosis
Hoʻokumu ʻia i ka makahiki 1985, ua hui pū ke Kōmike Panalaau no Cystic Fibrosis Adults (CPAFK) ma mua o 500 mau mākua Quebec me ka cystic fibrosis. He komite kākoʻo kēia e manaʻo nei e hoʻolaha a pale i nā pono a me nā pono o nā mākua me ka cystic fibrosis ma Quebec.
cpafk.qc.ca
ʻO ke alakaʻi olakino aupuni o Quebec
E aʻo hou aʻe e pili ana i nā lāʻau: pehea e lawe ai iā lākou, he aha nā contraindications a me nā pilina kūpono, a pēlā aku.
www.hooponopono.gouv.qc.ca
Pelekiuma
ʻO ka hui Belgian no ka hakakā ʻana i ka Cystic Fibrosis
mucus.be
Hawaiian
ʻO Swiss Society for Cystic Fibrosis (SFCH)
cfch.ch
ʻAmelika Hui Pū ʻIa
ʻO ka Foundation Cystic Fibrosis
cff.org
Azərbaycanda Kistoz Fibroz xəstəliyi ilə məşğul olan , maarifləndirmə vəs işlərini görən yegane təşkilat “Kistik Fibroz Xəstələrinə Yardım İctimai birliyi”dir .